Well, the good news is is that Savannah is a pretty healthy baby and the only thing keeping her from coming home right now is the fact that she can't suck, swallow and breath all at the same time. Not only can't she do this, she doesn't try or seem to have a desire to do so. So, basically we are just incurring some pretty heavy duty hospital bills to have the nursers change diapers and supply her milk through a feeding tube.
This could go on forever like this.
In order to bring Savannah home, she needs to have surgery to have a gastronomy tube (also know as a G Tube) put directly into her stomach, with the tube coming through the surface of her belly. This surgery will allow us to safely feed her at home. With time, and her treatments, we hope that the G Tube will be able to come out after a few months and she'll be able to intake food orally.
We have consented to the surgery, as it is obviously a necessary step to get her released from the hospital.... and then we can begin treatment for her!!! So, even though I didn't want her to have to have this surgery, it is a step in the right direction for getting her some help!
Surgery will more than likely take place tomorrow. Following a week's recovery, and being in the hospital for a total of 7 weeks, our little girl will finally get to come home with us! :)
Suzi,
ReplyDeleteThis is Izzy, OMGosh... This is crazy. Your story is incredible and I feel so much for Savannah already. Surgery is tough and you never want that for your child, but I think it is necessary. I hope and pray that she will get better each and every day.
Please take care of her.
TTYS.
Izzy & Issac
Thank you so much, Izzy. Your words mean so much!
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